Down Syndrome

Today i had a  talk with my friend  Cha  ..she was so excited abt the visit  she had this poya day to a home with kids with Down Syndrome in Colombo. .The warmth  and love she felt there was indescribable..I agreed completly with her,coz i have the same experience.For the parents its a shock when the baby is born,but this feeling changes very quickly.

Down syndrome (DS) is a condition in which extra genetic material causes delays in the way a child develops, and often leads to mental retardation. It affects 1 in every 800 babies born.

The symptoms of Down syndrome can vary widely from child to child. While some kids with DS need a lot of medical attention, others lead very healthy and independent lives.

Though Down syndrome can’t be prevented, it can be detected before a child is born. The health problems that can go along with DS can be treated, and there are many resources within communities to help kids and their families who are living with the condition.

Normally, at the time of conception a baby inherits genetic information from its parents in the form of 46 chromosomes: 23 from the mother and 23 from the father. In most cases of Down syndrome, however, a child gets an extra chromosome – for a total of 47 chromosomes instead of 46. It’s this extra genetic material that causes the physical and cognitive delays associated with DS

Here i post a story

I got a call from my father that my sister in-law was about to give birth.  So off I went just in time to see T.J into the world.  I was so proud when I left the hospital and so hurt when my brother (T.J’S Father) called me with the news that T.J had Downs.  I cryed all the way back to the hospital.  Once I held my buddy again as a Down Syndrome baby, there was no turning back for me. He had my love forever and I thank my brother and sister in-law for giving me such a joy every day of my life.  By the end of the day T.J was born, my Brother said he loved me, kicked me out of the hospital and said tomorrow is another day.  So I left. On the way out I was looking at all the other families that had babies that day and I felt sorry for them because we got the special one in our family.  T.J is 17 months now and very active and healthy. He has his whole life to teach me every thing he will learn.

                                                                                                      

 

 

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39 Responses to Down Syndrome

  1. Magick says:

    Hi Sweeti:
    You are so right about this.  Down Syndrome children are the sweetest, most loving children you could ever meet.  They love giving hugs and I love getting hugs.  I remember once, a long time ago (I still had long black hair then), I was out shopping for clothes and there was a Mother nearby with her little girl….the little girl had Down Syndrome.  Her little girl wandered over to me and started stroking my hair, then gave me a hug and then just stood there staring at me with a big smile on her face.  The Mother was very embarassed and came over to get her little girl and apologize to me.  I told her that there was no need to apologize….that I was very flattered and that I loved to get hugs.  I’ve encountered quite a few children and adults with Down Syndrome over the years and they’ve always been a great pleasure to be around.
    Hugs and Love,
    Diane

  2. Michiko's says:

    Hi sweeti san,
    I don’t know what said "Yes all children are the same" BUT hopefully my new grandchild (next Feb) is NOT in 800 those babies …
    my daughter-in law having the cat scanner for every month…so far so good.
    I’m very sorry for that the parents have Down Syndrome children… 
    Have a great week,
    xxxooooo
     

  3. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  4. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  5. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  6. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  7. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  8. Chamaree says:

    Thank you verrrrrrrrrrrrrrrrrrrrrrrrry much
     
    I will never be scared to have such a sweeti.  I will never be ashamed or regret to have such an angel.  Those children are a gift of God to teach us how to love, how to care and how to be happy inspite of all the sadness around us. 
     
    If you live with them you will see the angelic spirit of them and you will never stop loving them.  Please never be ashamed of them.  Take care of them.  Love them.  Give everything to them.
     
    I am prepared to have a DS child and will think it is a bless of having such a special child. That is how the God test you whether you are a real mother or farther
     
    Cha

  9. Chamaree says:

    sorry!
    i had a server prob. So there are several entries
    Cha

  10. Chamaree says:

    sorry!
    i had a server prob. So there are several entries
    Cha

  11. Chamaree says:

    sorry!
    i had a server prob. So there are several entries
    Cha

  12. ♥ Aimee says:

    i think that you are right…
    *~* :o) before you put on a frown… :o) make sure there are no smiles available… :o) *~*

  13. sillygloop says:

    "Taare zameen par" is the name of a movie relasing in India next month revolving around children…and the tagline goes – Every Child Is Special. There’s so much that a child can teach us and they’re such a joy to behold.

  14. sillygloop says:

    And yes, here’s wishing you the sun…may it shine bright n sunny to make your day!

  15. dr. says:

    They are angels
    1st time to deal with them was through my medical studies and yes i loved them so much , i loved being with them , you feel like you own the world with just a smile on their face..
    Have a great day sweeti

  16. Isabel says:

    Hello Sweeti!
    I am so touched by this entry!
    I know some children with DS and they are beautiful!
    They are the most sensitive people!
    Also they have great capacity to love…wich not everybody has!!!
    They are beeings just to love and being loved you will see!
    And he is sooo cute! 😉
    Hey I want to thank you to be there also!You are a great friend!
    Lots of love from ISA

  17. Alien Hunter says:

    Hello Sweeti,
    It would be so nice if everyone had a  touch of DS in them. The constant joy, the lack of hate,and the constant positive outlook on life. There really is a lot to learn from a baby with DS. T. J. will be an endless source of joy for everyone. A person with DS will never disappoint another person except for those who have no understanding.
    Thank you for the Thanksgiving wishses. I had a great day driving to visit my Mother and surprising her.
    Peace & Blessings.
    rwc
     

  18. Ruma says:

    Hello Sweeti,           I haven’t come into contact with many who have a family member with Down’s syndrome, but have seen many mothers with babies and young children around in public places.I feel so sorry for these mothers whose entire lives will be spent caring for their ‘special’ children. Although we may say that such children are a blessing from God, it takes an enormous amount of courage, faith and strength to accept and tend to a child with this problem.Bye for now….have a good day, and May God Bless You!Love, Ruma.

  19. Project says:

    I am familiar with DS in a thousand adults that I know personally..that extra Chromosome causes them not to learn hate and demonstrate pure love personified. It is hard to look at for the wicked..they just smile back like Jesus would, and God does indeed.
     
    I saw you on Magick’s space and I know the guy, or his type. They only intend to make you mad or cause you to cry..it’s a cybernet game called "make momma cry" in fact..and are they intelligent?
     
    Yes, and god should have made them better, but instead, he made the face on your site to look at and it would enraged them in fact..as wicked ones in fact.
     
    Also, they have indeed made their own mothers cry, and they threw the turds out long ago as contentious liars in their houses.
     
    The other class is about six or seven pretending to be adults so they can trash adults with whatever they can find on their sites..it is always that which you are for that they are against for their first comments.
     
    And the next level is to write to you as more than one person, and some of them are urls from your own friends on your site..watch out for that with this one guy on that probablility..K?
     
    And don’t cry for them either..be like the little boy in fact.
     
    I trash them back of course myself, and, try to scare them into "reformed" on that issue.
     
    David…science fiction writer. 

  20. Project says:

    Well thank you for saying that as I write pure humor in strange forms as a special writer in my mind. In fact, I think myself to be special altogther. I am as good as Jesus says I am..would I not believe him?
     
    Also, I have written another chapter on this story since you were there, and up now as finished. So I will put you on my favorites list and check in once in a while..you too if you like.
     
    But I write them and take them off everyday almost..so about five per day so far for most of my life? Wow I thought once. Now it’s normal for me.
     
    And that little boy is soooo cute..the face of god for sure.
     
    David.

  21. Magick says:

    Hi Sweeti:
    I don’t understand why people say hurtful things, either.  My Mother used to tell me that people were mean towards me because they were so unhappy in their own life and jealous of mine, so if they could find something mean to say about me, then it made them feel better about their own life.  It’s the only logical explanation I’ve ever been able to come up with as to why people would be hurtful.  I guess instead of feeling anger towards them, we should feel pity, because to be that type of person means that they must have a miserable life themselves. 
    Also, you and I, are the sort of people who will challenge a person if they speak that way to us….whereas, a lot of people would just let it go and not say anything.  But, I don’t believe people should get away with that kind of behaviour, they know that we are right and they get even more angry because "the truth hurts". 
    Your real friends know that you’re not a hypocrite….you are truly a sweet, loving, caring person and you do good things in your life.  So, just ignore what that person said and keep being yourself….like your name says "SWEETIE"….because that’s what you are.
    Hugs and Love,
    Diane

  22. Billy says:

    Hello Marijke!Yeah, I can surely agree there are always people who make terrible comments about others, mainly what they practise is being judgemental. They tend to judge others by their own standards. Leave them be.
     
    To these people, your attitude should be: "What you think of me is not my business" (remember that?) cos your real business in life is with the Divine one.
     
    You know, Marijke, your practise is the truest and most virtuous practise, that of Kindness and Compassion, not making judgement abput others. So, why worry?
     
    If you believe God is on your side, better still, that you are on God’s side, why worry?
     

    If you know what you are practising, and you believe in what you are doing, and you feel good doing what you do, and what you do relieves others of pain and suffering, YOU are already on God’s side! You know that at the end of the day its never between you and "them" or these other people, cos deep deep inside… its always between you and your own divinity. So why worry? Practise what you practise anyway…
     “ People are often unreasonable, illogical, and self-centered;Forgive them anyway.If you are kind, people may accuse you of selfish, ulterior motives;Be kind anyway.If you are successful, you will win some false friends and some true enemies;Succeed anyway.If you are honest and frank, people may cheat you;Be honest and frank anyway.What you spend years building, someone could destroy overnight;Build anyway.If you find serenity and happiness, they may be jealous;Be happy anyway.The good you do today, people will often forget tomorrow;Do good anyway.Give the world the best you have and it may just never be enough;Give the world the best you have anyway.You see, in the final analysis, it’s all between you and God;It was never between you and them anyway. ”
     
     

  23. Billy says:

    Oh, by the way Marijke, "BAD THINGS WILL NEVER HAPPEN TO GOOD PEOPLE" cos good people always find and share goodness around them no matter what the circumstances, and goodness prevails. This is the unbreakable law of divinity. Long live goodness!
     

  24. Delete52Mitch says:

    Heartbreaking!

  25. *white-flag* says:

    Hi Sweeti!!!!Am gald to see u back!!! how is life treating u? I was wondering … do u live in colombo/srilanka??? I was just curious coz…am visiting India on a vaccation in december and I have a halt in colombo during my journey. Just a little hope that I can meet u 🙂

  26. Chris says:

    Hey you! Wow, such a beautiful and touching entry. It is always fair to say that the things that make somebody different always make them special and unique. I think you wrote about that perfectly. How have you been? I hope you’re week has been going really well. I’m good. I’m happy now because I have read another story with a happy ending. I hope TJ grows up and makes an even bigger impact on the lives in a good way. I’m sure he will.
     

     
    Chris x

  27. Isabel says:

    Hello Dear Sweeti!
    I am just passing by to wish you a lovely weekend!
    I miss our chats …maybe soon we will talk again…
    Lots of love from ISA

  28. Jorge says:

    I take care of several patients who have Down’s Syndrome, and have learned over the course of the years what special gifts they bring us. Thanks for this heartfelt piece. Be well,
    J.

  29. Project says:

    Well thank you for the compliment, I do write constantly (day and night), and in fact it’s 3:15 AM now. I wake up and can’t go back to sleep and I write..sometimes about my dreams.
     
    I think entirely about solutions to problems, both large and small. So building and modifying "anything" are my two main professions..maintenence is the main catagory I worked in for one-fourth of my work efforts. Sales-oriented for the rest, and more jobs than anyone I know behind me..mostly construction.I get bored easily.
     
    I am building a small house for my ailing mother right now in fact, and finishing up the trim painting on the outside, getting ready today to start the bath and utility areas for framing and all that goes in that part…lots.
     
    It is a good thing I’m old, I could never "possibly" do all of the things I did again.
     
    Most said I was fanatic in my positions everywhere I went..I thought it to be "learning as fast as I can." And after "how," I went into "why" and "what kind?"
     
    When one can build anything, it’s either up to larger, like bridges and skyscrapers, or other aspects..so I now think only to build and designing "full systems facilities"..self-contained in fact.
     
    So consider the headquarters of a company that builds city-sized hospitals..what must they be like?
     
    The hospital itself is buildings in orders determined…parts like tinkertoy parts or car parts.
     
    Construction management and banking and legal are the key pieces I dream of, but sales are what I’m going to do with my internet studio…with a pool stick no less for "unique platform."
     
    David the giant slayer with a tapered shaft? Tipped and heeled? Is he dangerous with that thing do you think? You will see when my lights and camera and computer turns on..like when cows can fly.
     
    And the communication forms that eliminate the largest costs which reside in that section of the building’s parts are in that office for sure.
     
    Lack of communication is "always" for the purpose of covering up stealing methods the offices use everywhere. Secrecy claims are it’s methods, and cash payoffs are the tools. Loss and bankruptcy are it’s only life-cycles.
     
    The result is that the man works for just above bare necessity, the woman works for less, the child works for free, and the bosses get a split of the office’s take, which is 94.6 % of all costs.
     
    It is the 200 million dollar loans they give themselves for one thing, and add millions of dollars for salaries they determine they should have. The average is 30,000 times the salary of the bottom people. The result is that all the way down the line, people steal because all the others are on up.
     
    At the top, they let them steal a little to keep them from complaining about how much they steal at the top…right?
     
    And they all are in it together as utter crooks and thieves.
     
    Soooo, I have a new form that doesn’t allow several things and that’s the first one. I have built an automated office in my head, and in my writings..3,000 blogs? More? Many, many more? (Third choice includes all writings).
     
    In machine evolution, the lathe is the top one as the only machine that can make all others and also itself..the ultimate so far. And the human body is it’s only superior as the lathe is a copy of it’s own processes manifested.
     
    So to think like that is the subconscious normal..conscious can’t as it steals and cheats all things at all times. It cannot allow itself to be duplicated intentionally, and that cannot be avoided if humans can either touch the money or the books or the decisions…right? (say yeah man).
     
    So my office in the sky is a war ground where those who want to steal as they perform their duties are monitored and over-ridden constantly by the bottom people who get their fair share if it isn’t stolen in bad deals, nepotism groups, or other collusions.
     
    So what is fair in my policy guidelines?
     
    The child goes to school, the woman is boss, and the man get twenty-four times the original wages. The "stolen amount" becomes more than clear at that point to the previously compliant man.
     
    In my office, he can raise hell and get it reversed, changed, or his own idea accepted..better?
     
    And what can the women do when when their words are law from top to bottom? And also, on all issues up on the "open daily transaction boards?"
     
    I will call that the "OMG Corporation."
     
    And now honey, what is true is that the Six year old in school will make the best decisions for quality, quantity, and new designs. 
     
    I can see a hut-full of them in Somalia getting themselves a fortified school and sleeping quarters (etc) built in ten days through this process. I see them designing one that makes money. I see them approved for a two thousand occupants capacity system.
     
    So who have I eliminated? The entire executive body taking 90% for nothing, 4.6 are "actual" costs. Goodby giant losses and bankruptcy.
     
    The systems are pure, but the people are not. So to accomodate the executive who says they are worth their ideas, let them submit that which they say against a child and see if they are correct or not in the votes. Certain profit is established with that method.
     
    But "full-system" means sales at the bottom and at the top even more. That is my personal expertise..talk their panties right off of them?
     
    Well, I suppose that when I was young, I did more of that than necessary or rational even. Oh well is a man’s prayer to Jesus..I try to sound humble and repentent too..and..it don’t fool him at all…pats me on the head and says "Well do what you do fast, and be perfect..and brother Dave? Try to think about quitting some of these things for God’s sake."
     
    I have lots of things is why, and my prayers are like long lists. I think often on quitting too..but not until this office is up and building these franchaise hospitals for governments who will pay…in payments?
     
    Put that up on the company cyber-board for ideas for that for me..k? My fingers are tired, and my phone is lazy.
     
    And I only tell you of all this so that you do it for me after I die..your version.
     
    Start today and get cyber-profits rolling in faster..think "rich." Think team..think conquer and dominate while you are here chasing butterflies…I do.
     
    But think "women" and "their kids" and you got a good policy center vision of what I said. Maybe that is. I never know you know.
     
    Love,
     
    David.

  30. N M says:

    very interesting and insightful entry.

  31. Project says:

    Hi honey, and Merry Christmas (before hand) to you and TJ…it’s got to be one of his most fun times I’d bet.
     
    I used to help my cousin (with down sydrome) save every ribbon and bow and paper wrapping, and we’d fold each piece carefully, put them in separate boxes just the right size, and he’d keep them in his room with the toys..
     
    Sometimes, he’s ask me to pin one up on the wall and sometimes ribbons and bows..he’d pick the realtionships and it was a mess in some eyes, but colorful to him and he’d squeal like a little girl..kinda ( I have three girls)….clap his hands for what he’d done and so forth.
     
    Then at Thankgiving, I took them all down, he picked out some ribbon for the tree and a bow or two, and the rest back into the boxes all folded and neat as we put up the tree.
     
    Then we’d wrap one thing at a time for each person and he’d put them under the tree when done, you can tell his presents for sure. We opened his first, and a hug for each one is our deal..then start again.
     
    I knew him for one year, and now he’s on a farm in Utah in a small Mormon town, and 43 years old. Awards and medals for every civic thing you can think of…and cool.
     
    I used to think that they would fix his physical problems when little, and I strive to produce that even now.
     
    But as in "now," I see how bad that would have been for everybody..like tens of thousands in his case.
     
    TJ looks just like him.
     
    David.
     
     

  32. ☆Jαcq☆ says:

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  33. Project says:

    Happy New Year honey..I’ll send you a million when I get rich you know. I ask everyday of course to insure that.
     
    And where did the trash artist go? Ran and hid? Must have.
     
    So hold your breath and I’ll get you the cash right away..K?
     
    Love,
     
    David.

  34. Project says:

    Hi honey, there’s a report last night about a "large" explosion in Columbo and no follow-up. Hopefully, it’s not as bad as it sounded.
     
    Have you heard about it? "No deaths" would be a great answer.
     
    But your site is working, so it’s not total as I worried about.
     
    We’ll see such a thing someday soon I’d think if you know me. I need to give up keeping track of such things world-wide for my sense of personal security.
     
    It’s ugly out there in total. Not us though as lucky if nothing else I think. 
     
    Love you,
     
    David.

  35. Project says:

    I honey..a hug for you and every child you touch…love you..David.

  36. Project says:

    Opps! supposed to be "Hi honey"…darn finger…D.

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